We've lost another wonderful MEN2b patient member aged just 42 (my age).
Described at her cremation service as 'a life force', 'inspirational', 'brave'.
I met with Lou once - once is enough to have left an amazing and lasting impression of her wit and bravery.
She had this affect on everyone she met and will be so sorely missed by all who knew her.
Too many, too young.
It makes me angry that there is so little research into rare diseases like MEN
Please, please, please join us and help change all that.
Put those walking boots on and help us raise money to fund research into MEN
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